ECLip Registry

A registry for patients with lipodystrophy to drive scientific understanding, research and advancement in patient care. 

An initiative of the European Consortium for Lipodystrophies (ECLip)

0

Participating centers

> 0

Registered patients

> 0

Investigated parameters

Participating Centers

Rare diseases call for close collarborations between specialists. Centers all over Europe and beyond participate in the registry and work closely together.

For Physicians and Researchers

We would like to invite all interested centers/physicians within and outside of Europe caring for patients with lipodystrophy to participate in the ECLip registry.
Data usage for research purposes is possible for registry members and third parties!

For Patients

We aim to connect and inform patients on a national and international level.

Publications

Our goal is to raise awareness and publish findings aqcuired from the registry‘s data.

For requests, questions or help, please do not hesitate to contact us.​