For Physicians and Researchers
We firmly believe that only joint efforts in the field of lipodystrophy will improve scientific knowledge and result in improved treatment for
patients. Therefore we would like to invite all interested centers/physicians within and outside of Europe caring for patients with lipodystrophy
to participate in the ECLip registry.
We are happy to help every interested future member to obtain ethic approval at their local center.
How to join the registry
If you are interested in joining the ECLip Registry or would like to have more information, please contact:
- David Araújo-Vilar (david.araujo@usc.es)
- Martin Wabitsch (Martin.Wabitsch@uniklinik-ulm.de)
- Julia von Schnurbein (julia.vonschnurbein@uniklinik-ulm.de)
- Or any other ECLip registry board member
- HelpDesk (help-eclip-registry@uniklinik-ulm.de)
Interested in data?
Our status report provides an overview of the registry’s data, including patient numbers, the distribution of diagnoses, and more.
Are you interested in using the registry’s data for a research project?
Review the status report to determine whether the data you require are available in the registry (please note that publication of data from the status report is not permitted).
Data usage is possible for registry members and third parties!
An overview of the selected parameters in the registry can be found here.
If you are interested in using data of the ECLip registry for a research project, please contact: julia.vonschnurbein@uniklinik-ulm.de
